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Ethical Frameworks for Telecare Technologies (EFORTT)

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Summary: This research asks what are the normative reasons for and implications of, the introduction of remote care technologies for frail elderly people, for different stakeholders and for gender divisions in particular? The research will deepen the understanding of ethical issues raised by the development of new technologies of care from a distance worn, installed or embedded in the homes of older citizens. It will develop qualitative (ethnographic) approaches to understand the making of practice around remote care in both preventive and responsive modes. It will also develop deliberative approaches to the making of telecare policy at a European level by recruiting a citizen's panel in each partner's region to generate foresight into new care technologies and relations and by reconvening the panels to consider findings from the ethnographic studies. The project will develop an empirical ethics of evolving and of future care technologies based on ethnographic and deliberative methodologies.

Key Facts

Website: http://www.lancs.ac.uk/efortt/

Funder: European Commission

Type of Activity: Academic Research - Externally Funded , Collaborative Research

Co-investigators: Christine Milligan (Division of Health Research), Maggie Mort, Celia Roberts

Dept/Research Groups: Centre for Gender and Women's Studies, Centre for Science Studies, Sociology, Division of Health Research

Partners: University of Amsterdam, Netherlands , Autonomous University of Catalonia, Barcelona, Spain, Other (EU)

Keywords: Science and technology studies, Telecare, Telemedicine, Ageing, EU law and policy, Health and Older People, Gender, Public participation, ICT, Identity, Ethics, Governance, Ethnography

Project Description

Consortium

Lancaster University UK: School of Health & Medicine; Department of Sociology; Centre for Science Studies (CSS); Centre for Gender & Women's Studies

Dr Maggie Mort, Dr Celia Roberts, Dr Christine MilliganLancaster provides a stimulating and supportive environment for the development of cutting-edge social science methods and concepts. The team comes from a variety of disciplines, including science and technology studies, sociology, social geography and women's studies. All researchers have completed major projects in the social studies of health and biomedicine. Mort and Roberts, who will be the primary researcehrs, have extensive experience in ethnographic research on new health technologies. Mort has been involved in citizens' panels in the UK and is highly familiar with this method of participative research. Roberts has experience working with health consumers both as a researcher and a facilitator of consumer activism and engagement.

Diakonhjemmet University College, Department of Nursing & Health Care

Dr Ingunn Moser, Hilde Thygesen This team contributes expertise in researching a) the development and implementation of new technologies in hospital medical care, b) the emergence of Alzheimer's' Disease and dementia as a social problem, tracing the different and changing ways of understanding and handling the disease in the contexts of medicine, politics and everyday caring practices, c) smart home technologies in care for older people, people with dementia and people with learning disabilities and d) ethical and legal issues in relation to the introduction of these new technologies

University of Amsterdam, Academic Medical Centre

Professor Dick Willems, Dr Jeanette Pols

This team brings ethical and medical expertise to the project; (both are trained as philosophers and Willems is a general practitioner,) as well as strong links to medical research and teaching through their institutional location. Both have previously undertaken funded research on telecare technologies and are well-regarded members of the science and technology studies intellectual community. Pols is a highly experienced ethnographer who has studied nursing care in various contexts, including psychogeriatric units. Willems is well known for his innovative work on medical ethics (particularly in relation to end of life and neonatal care), both in terms of research and policy engagement. He is a member of the Ethics and Law Standing Committee of the Dutch Health Council and a member of the Council for Public Health and Health Care.

Universitat Autònoma de Barcelona / Departament de Psicologia Social / Grup d'Estudis Socials de la Ciència i la Tecnologia (GESCIT)

Dr Miquel Domenech, Dr Francisco Tirado, Daniel Lopez, Blanca Callen and Tomas Sanchez-Criado

This group brings expertise in social psychology, with a particular focus on the experience of healthcare technologies. It has previously run two projects concerning the social impact of ICTs in organisations and institutions and virtualization processes - both projects were case studies of call centres and telecare. The group is currently focused on the consequences of ICT innovations in care and medical settings (telecare) both from an organisational point of view as well as from a subjective and intersubjective dimension. They aslo work in partnership with a German research group on a funded projectr titled 'Feeling at home with technologies? An analysis of the impact of (assistive) technologies for the elderly and disabled people'. The group has valuable links with the Open University of Barcelona.

Our Partners

University of Amsterdam, Netherlands - Academic Medical Centre

Autonomous University of Catalonia, Barcelona, Spain - In association with the Open University of Catalunya

Other (EU) - Diakonhjemmet University College, Oslo

Research Significance

Academic

Policy

Public Sector

Purpose of Research

Academic Research - Externally Funded

Collaborative Research

Project Funder

European Commission

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