Dr Mary TurnerFrontline Adviser/Research Fellow
My research expertise is in palliative and end of life care, and over the past 10 years I have undertaken research in a range of care settings, including hospices, hospitals, care homes and prisons. I have expertise in qualitative and mixed methods. I have recently completed a Marie Curie-funded action research study on end of life care for prisoners. I am also an advisor for the NIHR Research Design Service North West.
Both sides of the fence: using action research to improve end of life care for prisoners. Turner M, Payne S, Froggatt K, Fletcher A, Scott G, Gibson R. Marie Curie Cancer Care (2013-2015).
Initiating end of life care in stroke: clinical decision-making around prognosis. Burton C, Payne S, Tyrrell P, Rycroft-Malone J, Williams S, Tyson S, Elghenzai S. Marie Curie Cancer Care (2013-2015).
PhD student research:
Understanding the use of out-of-hours services by older people and their families: a mixed methods study. Lambert W. (2008-2014)
Exploring the attitudes of hospice trustees to service user involvement in governance. Poulson K. (2010-2015)
Parental decisions around end of life locations for their child: a grounded theory study. Quinn C. (2012-2016)
I have been fortunate since joining Lancaster University to work on a number of different projects with colleagues from this and other universities, the NHS, the voluntary sector and other organisations, and I am very interested in collaborations that facilitate applied research for the benefit of patients and family members. One example of this was a study which brought together researchers, clinicians and service users to understand how decisions are made about initiating end of life care for stroke patients.
Having been very involved with the ‘Unpacking the home’ study , which was led by Professor Sheila Payne, I also have an interest in informal carers and their experiences of caring for family members at the end of life. This study highlighted the multiple burdens placed on family carers, particularly older carers aged over 80, and made a number of important recommendations for practice, policy and further research. I have recently published a paper that highlights the particular issues faced by older carers.
My main interest, however, is in palliative care in prisons and in how equitable care can be provided in this marginalised setting. Older prisoners are the fastest growing section of the prison population, and increasing numbers of prisoners with disabilities and life-limiting conditions are requiring palliative care. Prison staff face particular challenges in delivering round the clock care, managing symptoms and supporting family members in a setting where security is of paramount importance. With colleagues in the Observatory I undertook a regional evaluation of end of life care in prisons in 2009; this led to the development of the Marie Curie-funded study, in which the research team worked with a broad range of prison staff (including healthcare staff, prison officers, governors and chaplains), staff from outside the prison (in primary care and hospice) and older prisoners themselves to improve end of life care for prisoners.
I currently supervise 3 PhD student projects (see current research).
I joined the International Observatory on End of Life Care in February 2007 to work with Professor Sheila Payne as a Research Fellow. Prior to this I had a lengthy nursing career in the NHS, predominantly in clinical roles (including ward manager and clinical nurse specialist), and latterly in an end of life care strategic leadership role. My interest in research was sparked whilst in clinical practice and, following the award of a research studentship from the Department of Health, I completed my PhD at King’s College London in 2001.
Since joining the Observatory team, I have worked on a broad range of research projects, and have been able to draw on my strong NHS background as well as gain new research expertise. I have developed particular expertise in palliative and end of life care for prisoners, and have been successful in securing funding to continue my research in this area. I have also developed expertise in research ethics, both from my involvement in the Faculty of Health and Medicine’s Research Ethics Committee and from my extensive experience of NHS ethics and governance processes.
"We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system
Peacock, M., Turner, M., Varey, S. 7/04/2017 In: Sociology.
Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners
Turner, M., Peacock, M. 18/01/2017 In: Journal of Correctional Health Care. 23, 1, p. 56-65. 10 p.
Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences
Turner, J.M., King, C., Milligan, C., Thomas, C., Brearley, S.G., Seamark, D., Wang, X., Blake, S., Payne, S.A. 05/2016 In: Age and Ageing. 45, 3, p. 421-426. 6 p.
Improving palliative care for prisoners: the 'both sides of the fence' study
Turner, J.M. 03/2016 In: Prison Service Journal. 224
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J.M., Blake, S., Brearley, S.G., Seamark, D., Thomas, C.J., Wang, X., Payne, S.A. 03/2016 In: Health and Place. 38, p. 103-111. 9 p.
Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges
Froggatt, K., Preston, N., Turner, M., Kerr, C. 12/2015 In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521. 4 p.
Care for people in prison
Turner, M., Peacock, M. 20/11/2015 In: Palliative care nursing at a glance. Wiley ISBN: 9781118759219.
Family carers providing support to a person dying in the home setting: a narrative literature review
Morris, S., King, C., Turner, M., Payne, S. 06/2015 In: Palliative Medicine. 29, 6, p. 487–495. 9 p.
Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study
Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S., Milligan, C. 06/2015 In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188. 8 p.
The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L.I., Tyson, S., Mitchell, H., Williams, S., Elghenzai, S. 5/12/2014 In: BMC Palliative Care. 13, 8 p.
Dying at home: a qualitative study of family carers' views of support provided by GPs community staff
Seamark, D., Blake, S., Brearley, S.G., Milligan, C., Thomas, C., Turner, M., Wang, X., Payne, S. 1/12/2014 In: British Journal of General Practice. 64, 629, p. e796-803. 8 p.
Research in palliative care: can hospices afford not to be involved?
Payne, S.A., Preston, N.J., Turner, J.M., Rolls, L. 10/2013 Help the Hospices. 42 p.
Age UK: Supporting Older Carers of Those Nearing the End of Life: Lancaster University Evaluation of Six Pilot Projects
Morbey, H., Payne, S., Froggatt, K., Milligan, C., Turner, M. 09/2013 Lancaster University. 69 p.
The perspectives of bereaved family carers on dying at home: the study protocol of 'unpacking the home: family carers' reflections on dying at home
Payne, S., Brearley, S., Milligan, C., Seamark, D., Thomas, C., Wang, X., Blake, S., Turner, M. 22/11/2012 In: BMC Palliative Care. 11, 5 p.
Methods of building and improving the research capacity of hospices
Turner, M., Payne, S. 2012 In: European Journal of Palliative Care. 19, 1, p. 34-37. 4 p.
Mandatory communication skills training for cancer and palliative care staff: does one size fit all?
Turner, M., Payne, S., O'Brien, T. 12/2011 In: European Journal of Oncology Nursing. 15, 5, p. 398-403. 6 p.
Care or custody?: an evaluation of palliative care in prisons in North West England
Turner, M., Payne, S., Barbarachild, Z. 06/2011 In: Palliative Medicine. 25, 4, p. 370-377. 8 p.
Palliative care for prisoners
Turner, M., Payne, S. 2011 In: Death, dying, and social differences. Oxford : Oxford University Press p. 200-206. 7 p. ISBN: 9780199599295.
Psychological issues for the patient with breast cancer
Rogers, J., Turner, M. 2011 In: Breast cancer nursing. Chichester : Blackwell Publishing Ltd p. 309-328. 20 p. ISBN: 9781405198660.
Governance in changing times : the experiences of hospice trustees in the United Kingdom.
Turner, M., Payne, S. 12/2009 In: Palliative Medicine. 23, 8, p. 718-722. 5 p.
How notorious do dying prisoners need to be to receive high quality end-of-life care?
Turner, M., Barbarachild, Z., Kidd, H., Payne, S. 2009 In: International Journal of Palliative Nursing. 15, 10, p. 472-3. 2 p.
Uncovering the hidden volunteers in palliative care: a survey of hospice trustees in the United Kingdom
Turner, M., Payne, S. 12/2008 In: Palliative Medicine. 22, 8, p. 973-974. 2 p.
Practice development in palliative care.
Froggatt, K., Turner, M. 2008 In: Palliative care nursing : principles and evidence for practice. Maidenhead : McGraw Hill p. 643-659. 17 p. ISBN: 0335221815.
Research methodologies in palliative care: a bibliometric analysis
Payne, S., Turner, M. 2008 In: Palliative Medicine. 22, 4, p. 336-42. 7 p.
Implications of the Mental Capacity Act 2005 on advance care planning at the end of life
Foster, J., Turner, M. 19/09/2007 In: Nursing Standard. 22, 2, p. 35-39. 5 p.
Involvement or over-involvement? Using grounded theory to explore the complexities of nurse-patient relationships
Turner, M. 09/1999 In: European Journal of Oncology Nursing. 3, 3, p. 153-160. 8 p.
Using participatory action research to advance hospice care
01/11/2016 → …
Both sides of the fence: using action research to improve end of life care for prisoners
01/06/2013 → 31/05/2016