Genetic Databases - Flagship Project

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Project Outputs

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• Presentations
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Publications

• B Knoppers R Chadwick. Human genetic research: emerging trends in ethics Nature Reviews Genetics Vol 6 No 1 (2005) pp75-79
• M Bhardwaj. Global Bioethics and International Governance of Biotechnology, Asian Biotechnology and Development Review. 2004 Vol 6, No 1. ISSN 0972-7566
• M. Bhardwaj. Rich databases and poor people: opportunities for developing countries. TRAMES, The Official Journal of Estonian Academy of Sciences Volume 8 Number ½, 2004
• S Wilson. Population Biobanks and Social Justice: Commercial or Communitarian Models? A comparative analysis of benefit sharing, ownership and access arrangements , TRAMES ‘Vol 8, No1/2 2004 pp80-89 ISSN 1406-0922
• M. Bhardwaj. Biobanks, genomics and databases: a question of attribution in DRJ Macer edited Challenges for Bioethics in Asia. October 2004. EEI 2004 ISBN: 0-908897-20-0
• R Chadwick S Wilson* Genomic Databases as Global Public Goods? Res Publica 10 (2) pp123-134, 2004 Article ID: 5269018
• A Cutter S Wilson R Chadwick Balancing Powers: Examining models of Biobank Governance 2004 Journal of International Biotechnology Law Vol 1 No 5, pp187-192 ISSN 1612-6068
• R Chadwick M Bhardwaj S Wilson* A M Cutter* Background paper on Governance of Human Genetic Research Databases: issues of privacy and security for OECD
• S Wilson Biobanks and the ‘social’ in Social Justice in ‘Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases’ Arnason G Nordal S† Arnason V†(eds), University of Iceland Press & Centre for Ethics Reykjavik pp333-338 2004, ISBN 997954593-
• M Levitt S Weldon Genetic databases and public trust, Arnson G† Nordal S† Arnason V† (eds) Blood & Data. Ethical, legal and social aspects of human genetic databases, University of Iceland Press & Centre for Ethics Reykjavik pp175-179 2004, ISBN 9979-54-593-3
• S Weldon M Levitt Public databases and privat(ized) property? A UK study of public perceptions of privacy in relation to population based human genetic databases, Arnson G† Nordal S†Arnason V† (eds) Blood & Data. Ethical, legal and social aspects of human genetic databases, University of Iceland Press & Centre for Ethics, Reykjavik pp181-186 2004, ISBN 9979-54-593-3
• R Chadwick Telling the truth about genomics Communication & Medicine 2004 Vol 1 Issue 2 pp 193-199 Print ISSN 1612-1783, Online ISSN 1613-3625
• R Chadwick Nutrition, individualism and public health. Proceedings of the Nutrition Society, Vol 63 no 1 pp161-166 February 2004
• M Bhardwaj Developing countries participation in the global governance of biotechnology Song SY† Koo Y M† Macer DRJ† (eds) Asian Bioethics in 21st Century pp 197–205, EEI, Japan, 2003, ISBN 0908897138
• Forthcoming Publications
• M. Bhardwaj. Looking back, looking beyond: revisiting ethics of genome generation. Journal of Biosciences, December 2005. (accepted)
• M. Bhardwaj. Biobanks and the notion of justice in health. Law and the Human Genome Journal. ( invited)
• M. Levitt and S. Weldon (2005) A well placed trust? Public perceptions of the governance of genetic databases Critical Public Health (accepted)

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Presentations

• R. Chadwick Biobanks. Can ethics be harmonised? NOWGEN_CESAGen joint seminar 20 October 2005
• M. Levitt Biobanks and the public NOWGEN-CESAGen joint seminar 20 October 2005
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  M. Bhardwaj. Constituting ethics into biotechnology policies and developing international relations. The First UNESCO Bangkok Bioethics Roundtable, Thailand, 11-15 September 2005.
• M Bhardwaj. Mapping statistical validity of databases and prospects of biobanking in Asia in the Panel Human Genetic Biobanks in Asia: Issues of Privacy and confidentiality, ICAS 4, Shanghai, China, 20-24 August 2005.
• M Bhardwaj. Justice and participation in the governance of genomics, Luneburg University special seminar, June 2005
• M Bhardwaj. Genetic association studies and validity of genetic databases, Biobank Workshop, Berlin, June 2005
• M Bhardwaj. Ethical complexities in the governance of HGRDs, United Nations University, Brown bag Seminars, Tokyo, Japan, 9th May 2005
• M. Bhardwaj. Population based Genetics Research: some contentious issues, Institute of Biological Sciences, University of Tsukuba, Japan, 2nd May 2005
• M Bhardwaj. Genetic Databases: issues of ethics and governance, Graduate School of Biostudies, Kyoto University, Japan, 27 April 2005
• R Chadwick. Databases, Genes and nutrition‘Evolution of the Life Science Industries’ Innogen International Conference. Session 2.4 - Genetic Databases: Impacts on Public Health. Edinburgh, 25 April 2005.
• R Chadwick. Human Genome Meeting HGM 2005, Kyoto, Japan, 15 - 22 April 2005
• M Bhardwaj. HGDBs and genetic association studies: a question of miscalculation or ignorance? Human Genome Meeting HGM 2005, Kyoto, Japan, 15 - 22 April 2005
• M Bhardwaj. Governance of genomic databases: some contesting issues, “Genomics & Society” CESAGen 2nd International Conference, Royal Society, London, 12-14 April 2005
• M. Bhardwaj. The post-genome era: from individuals to populations. International Seminar on Environment and Medicine: recent ethical perspectives. Pune University, India, January 2005
• M Bhardwaj. Biobanks and the notion of justice in health, International Seminal on Biotechnology, Development and Justice Universidad de Deusto. Bilbao, Spain, 22-23 November 2004
• M Bhardwaj, S Wilson A Campbell† (Chair of UK Biobank Ethics and Governance Council) International Association of Bioethics World Congress. Symposium presentation; The Ethics of Biobanking and Applied Issues-Theoretical and Policy Perspectives Sydney, Australia, 9-12 November 2004
• M Bhardwaj Genetic databases and biobanks, World Bioethics Congress (WBC), Sydney, Australia, 9-12 November 2004
• M Levitt. Biobanks: Promise and Concern Guangzhou, Sino-UK Biobank Forum, China 18th October 2004
• M Levitt, D Archard, G Williams, S Weldon Title of presentations, Biobanks and Global Governance, Informed Consent in Context, Legitimating principles for human biobanks, Genetic databases: public concerns and privacy, British Council Sino-UK Bioethics Workshop “Ethics and Life Sciences”. Beijing, China, 16-22 October 2004.
• G Williams. British Council delegation. Human Biobanks: beyond informed consent Chongqing, China, 16 – 22 October 2004
• G Williams. British Council delegation workshop. Human Biobanks: beyond informed consent Beijing, China, 16–22 October 2004
• R Chadwick. Ethical aspects of human genetic testing, The Consortium for Post-Genome Science 2nd Conference “Genomes to Systems”, session 5B – Pharmacogenetics and Healthcare. Manchester, UK, 3 September 2004
• M Cutter. Genetic Databases and what the Rat Won’t Do: What is Dignity at Law? International ELSAGEN Conference Session 3.7: Values, Knowledge and Dignity. Reykjavik, Iceland, 25-28 August 2004
• M Levitt, S Weldon. Genetic Databases and Public Trust, International ELSAGEN Conference Session 1.7: The Public Discourse on Genetics and Databases. Reykjavik, Iceland, 25-28 August 2004
• S Weldon, M Levitt. Public Databases and privat(ised) property, International ELSAGEN Conference Session 2.7. Reykjavik, Iceland, 25-28 August 2004
• S Wilson. Biobanks and the ‘Social’ in Social Justice, International ELSAGEN Conference Session 5.7: Benefit-sharing and justice. Reykjavik, Iceland, 25-28 August 2004
• M Bhardwaj. Is DNA ‘Do Not Assume’ in forensic genetics (databases)? Institutionalization of Ethics in Science (INES) Workshop. Rome, Italy, 17-18 June 2004
• R Chadwick. Priorities in Pharmacogenetics, CCELS Annual Conference. Cardiff, 12 June 2004
• R Chadwick. Genetic Databases, Global Health and Social Justice Medical Ethics: Global Issues and Multicultural Perspectives Conference. Cambridge, 7-8 June 2004.
• R Chadwick. Bioethics and the Global Governance of Human Genetic Databases, Science & Society Colloquium series, Kennedy School of Government, Harvard University, Boston, USA, 7-11 April 2004
• R Chadwick & K Berg. Priorities in pharmacogenetics, Human Genome Meeting (HGM) 2004, Symposium on Pharmacogenomics. Berlin, Germany, 4-7 April 2004
• M Bhardwaj. Genetic Databases: opportunities for developing countries. “Genomics and Society” 1st CESAGen International Conference, The Royal Society London 2-3 March 2004
• R Chadwick Organisation for Economic Cooperation & Development (OECD) “Human Genetic Research Databases: Issues of Privacy and Security”. Invited discussion leader – HRGD Governance, Tokyo, Japan, February 2004
• A M Cutter. Genetic Databases and the Balance of Powers, IMLAB Postgraduate Conference, Keele, February 2004
• M Bhardwaj. Genetic Databases: Challenges to global ethical frameworks and opportunities for developing countries. 5th Asian Bioethics Conference and 9th Tsukuba Roundtable, Japan, February 2004
• R Chadwick. Invited speaker –Genetic Databases: Individual Protections and Community Benefits, Beijing International Conference on Bioethics (BICB) 2004, Beijing, China, January 2004
• M Bhardwaj. Global governance of biotechnology ASEAN EU-LEMLIFE Workshop, Chulalongkorn University, Bangkok, Thailand, January 2004
• R Chadwick Ethics and Technology Conference, Twente, Netherlands. Genomics, Ethics and Identity, January 2004
• R Chadwick Invited speaker on Ethical Implications of Biobanking. Genetic Databases: Individual Choices and Community Benefits, Second European Forum of National Ethics Councils, Rome Italy, December 2003
• M Bhardwaj. Looking back, looking beyond: revisiting ethics of genetic determinism, Discussion meeting on Genetic Determinism, Peling, India. Organised by Indian Institute of Sciences, Bangalore, India, December 2003
• R Chadwick. Invited speaker on Ethical Implications of Biobanking. Genetic Databases: Individual Choices and Community Benefits, 2nd European Forum of National Ethics Councils, Rome, Italy, 18-20 December 2003
• M Bhardwaj. Ethical issues in Genetic Databases. Nature, Science, Technology and Religion: Our Common Bioethical Issues, Chennai, India. Organised by EcoVision Department, CSI Madras India, November 2003
• S Wilson. ELSAGEN workshop “Are genomic databases global public goods?” Iceland, 25-29 September 2003
• M Bhardwaj. Invited talk- Ethical issues in genetic databases, III International Bioethics Congress. Monterrey, Mexico 25-27 September 2003
• M Bhardwaj. International Governance CESAGen seminar series., Lancaster University, 18 June 2003
• R Chadwick. Genetic Possibilities – Information & Choice, HGM 2003 Public Forum, 1st Latin American Network of Bioethics. Cancun, Mexico 1-2 May 2003
• R Chadwick. Therapeutic Cloning; Certainty & Uncertainty, HGM 2003 Conference, Cancun, Mexico 25-30 April 2003
• M.Levitt. Genetic databases: public perceptions of privacy and trust Invited contribution to Symposium: Genetic applications: anticipating public needs. British Psychological Association annual conference. Bournemouth. March 13 2003.

Workshops

• M Bhardwaj. “Genomics & Society” CESAGen 2nd International Conference. International Panel on Biobanks and Genetic Databases, the Royal Society, London, 12-14 April 2005
• M Bhardwaj, S Wilson A Campbell† (Chair of UK Biobank Ethics and Governance Council) International Association of Bioethics World Congress. Symposium presentation; The Ethics of Biobanking and Applied Issues-Theoretical and Policy Perspectives Sydney, Australia, 9-12 November 2004
• M Bhardwaj. PropEur international workshop “Models of Property Rights in human genome research and other genetic technologies” Cardiff, 8 July 2004

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