Defying Dementia Day 2018

Living well with dementia and developments in research

Event Agenda

Event Agenda

Two streams of lectures took place throughout the day. Room A focussed on developments in research, and Room B focussed on living well with dementia.

 

10:00 - 10:10
Welcome and Introduction

Dr Penny Foulds, Defying Dementia

----------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

10:15 – 10:40   
Defying Dementia Update: Where we are today and what we need to find out in the future

Professor David Allsop, Defying Dementia Lancaster University

The Defying Dementia team have developed a drug that has the potential to block the formation of plaques in the brains of people with Alzheimer's. They are now working to make the drug even better by extending the technology to stop the brain tangles as well. Professor Allsop will discuss the development of this treatment, which will be studied in people in a clinical trial at MAC Clinical Research.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

10:45 – 11:10   
How flashing strobe light might delay Alzheimer’s

Dr Thomas Wilcockson, Lancaster University

Scientists have found that exposure to a rapidly flashing strobe light encourages the brain's protective cells to get rid of the harmful plaques and tangles that accumulate in the brain, as a result of Alzheimer’s. This research has been conducted in laboratory models of the disease, but has implications for people living with Alzheimer's. Clearing the plaques and tangles, and stopping more from forming, could slow down the progress of Alzheimer’s and its symptoms. This potential safe, painless and non-invasive form of treatment will be explained.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

11:10 – 11:30

Break

-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

11:30 – 11:55

Clinical research: What is it, and why get involved?

Cathy Jepson, MAC Clinical Research; Terry and Tina Jones, Research Champions living with dementia

At the moment there are no drugs that slow down the progression of dementia, never mind cure it. We need more dementia research studies to investigate potential therapies. So, what is a research study? What does it involve? Are there any costs? Terry and Tina, who are living with dementia and who have experience in clinical research, will be there to answer questions about what is involved, and what’s in it for you! 

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

12:00 – 12.25   
Memory problems, my GP and me

Dr Thomas Marland, Fylde and Wyre CCG

How do I get to see my GP about memory problems? How can I get a family member with memory problems to see a GP when they won't accept there is a problem? What will happen at the appointment and afterwards? What ongoing support and input will I get from my GP?

Experiencing memory problems can be worrying, but seeking help early offers the best chance of getting the right support, advice and treatment.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

12:25 – 13:00  
Lunch break

-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:00 – 13:25   
Updates in ageing research at Lancaster University

Professor Carol Holland, Centre for Ageing Research, Lancaster University

Hear an overview of the work taking place at the Centre for Ageing Research, examining physical and psychological frailty and resilience, and their effects on everyday life. Listen to findings that show the importance of combining the range of issues that have an impact on us as we get older, in order to help predict what care a person may need. This will include physical health and capabilities, psychological well-being, our social situation and how age-friendly our environment is.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:30 – 13:55  
Living and dying with dementia: Keeping a balance

Professor Katherine Frogatt, Centre for Ageing Research, Lancaster University

Although much research focuses on cures, care and how to live well with dementia, it is important to consider how we can support people with dementia, alongside their family, to die well.  There is much to be gained from the best of person-centred dementia care alongside palliative care. This presentation will explore what good care at the end of life could look like, drawing on recent and current research.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:55 – 14:15  
Break

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

14:15 – 14:40   
Why do people with mental health problems die young? Is it their genes?

Dr Neil Dawson, Defying Dementia, Lancaster University

People with severe mental health disorders die young – poor diet, lack of exercise and smoking all contribute, but could it also be in their DNA? There are genes that increase the chances of developing severe mental health disorders, but could they also influence ageing? If so, can we use this information to develop new drugs to stop people with severe mental health disorders from dying prematurely?

  

10:15 – 10:40    
Dementia – Let’s challenge those myths!

Christopher Moore, MAC Clinical Research

“It's no good talking to her, she can't remember what I said”

“It doesn't matter what people might say in front of him because he can't understand”

“She doesn't recognise me so there’s no point in visiting her”

These are a few examples of myths that exist around people living with dementia. How can we challenge these misunderstandings?

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

10:45 – 11:10
A summary of services available to people living with dementia & their carers

Anne Oliver, Age UK Lancashire

Hear how the voluntary sector can support you, including charity, community and voluntary groups. Hear about the work of the Alzheimer’s Society, Age UK, N-compass, and the Dementia Hubs, which bring many providers together. The support of the public sector services, such as CMHT, Rapid Intervention Team, along with local council support, will be discussed.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

11:10 – 11:30

Break

-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

11:30 – 11:55
How to manage nutrition and hydration in people living with dementia

Dianne Smith, Matron for Dementia, Morecambe Bay Hospital Trust

People with dementia might not eat and drink as well as they should – we will discuss the practicalities of preparing and cooking a meal, choosing the food you cook, and tips on how to encourage people with dementia to eat and drink well.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

12:00 – 12.25 
Tips on day to day living for people with dementia and their carers

Hanna Munro, Dementia Specialist Occupational Therapist, Risedale Care Homes, Cumbria

 With practical advice on personal care activities such as dressing, domestic activities such as cooking and leisure activities, as well as advice on the home environment and keeping safe. The little things in life can make a huge difference and keep people healthy and happy in their own homes for as long as possible.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

12:25 – 13:00   
Lunch break

-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:00 – 13:25
Adult Social Care – who pays for what?

Gary Rycroft, Solicitor, Joseph A. Jones & Co.

This short session will discuss the rules about who is liable to pay for adult social care and who is not, and we will also discuss if there are actions that can be taken to protect assets for the benefit of other family members. It will be an overview of the law in this area. However, no specific legal advice will be given.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:30 – 13:55   

The management of perceived challenging behaviours in dementia

Julie Henworth, Lancashire Care NHS Foundation Trust

Why sometimes people with dementia behave out of character, in ways we may find challenging to deal with. The behaviours discussed are more likely to occur later in the dementia journey. I will also be sharing some ideas about how to reduce the likelihood of challenging behaviours, and some strategies for limiting any negative affects if/when they do.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

13:55 – 14:15   
Break

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

14:15 – 14:40    
Losing the ability to make decisions about health needs

Alison Nicholson, Morecambe Bay Hospital Trust

What is capacity? What are ‘Advance Care Plans’? When someone with dementia loses the ability to make decisions about their own health and treatment, any decisions taken on their behalf must be in their best interests.

------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

14:45 – 15:20   
Dementia and Me: 
A panel discussion with people living with dementia

Tina and Terry Jones, Peter Lyttle, Pam and Steve Begg

Contact Us

By Post

Development and Alumni Relations
C Floor
University House
Lancaster University
Bailrigg, Lancaster
LA1 4YW
United Kingdom

 

By Phone

+44 (0)1524 594109

We're here Monday to Friday 9am - 5pm

By Email

alumni@lancaster.ac.uk