Evaluating Service Models

There have been a number of studies and evaluations to generate evidence about the delivery and efficacy of palliative care and end of life care interventions and services, linked to wider changes in health and social policy, in the United Kingdom and internationally. Our interests have focused on models of evaluation and how evidence is generated, and is utilised by service providers and commissioners. We have extensive experience of working with Third Sector organisations on evaluations of new models of care and on the implications for service users and service providers.

Further details about current and recently completed work are available using the links on this page.

Current projects

InSup-C, patient-centered integrated palliative care pathways in advanced cancer and chronic disease
For more information contact: Dr Sean Hughes

Project leaflet coverInSup-C aims to identify best practice in integrated palliative care (IPC) by examining models of care delivery across a number of European countries. The project will use a mixed methods approach to establish a taxonomy of IPC systems. It will also gather patient and carer views on their experience of engaging with and accessing services within some of the IPC exemplars. A further aim of the study is to explore the organisational, managerial, financial and regulatory aspects of IPC model projects. The study will focus on people with advanced cancer and those living with advanced, chronic disease, specifically chronic heart failure (CHF) and chronic obstructive airways disease (COPD). The work is organised in six work packages (WP) led by national consortium members, but to which all partners will contribute. These are:

  • WP1: Project Management
  • WP2: Literature review of existing evidence for IPC initiatives in Europe
  • WP3: Taxonomy of IPC initiatives in Europe
  • WP4: Experiences of patients and (informal) care providers with IPC
  • WP5: Development of (requirements for) best practices in IPC in Europe
  • WP6: Dissemination

The IOELC at Lancaster University is leading on WP6, Dissemination but will be heavily involved in other work packages throughout the course of the project.

More information about the study may be found on the InSup-C website:
http://www.insup-c.eu/

Applicants: Sheila Payne, Nancy Preston, Sean Hughes, Anthony Greenwood
Funded by: European Union FP7 framework, project ref: 305555
Project start date: 01 November 2012
Project end date: 31 October 2016
Resources:
Volunteer Management in Palliative Care: Meeting the specific challenges of involving volunteers in palliative care roles which require direct contact with patients or their families
For more information contact: Dr Sara Morris

Project leaflet coverThis two year research study responds to the needs of hospices and specialist palliative care services, which are facing the twin pressures of declining volunteer applicant numbers and increased demand for volunteer involvement. Hospices and specialist palliative care services are likely to respond to this dilemma by expanding the way they involve volunteers, specifically by involving volunteers in roles which require direct contact with patients or their families. At present there is very little guidance on how best to involve and manage volunteers in these kinds of roles. The aim of this research is to identify and distil guidance for hospice and palliative care services on how best to meet these challenges.

The study is led by Professor Sheila Payne in collaboration with Nick Ockenden of the Institute for Volunteering Research and is funded by Dimbleby Cancer Care and Marie Curie Cancer Care.

Video interviews with Sheila and Nick can be found by clicking here.

Applicants: Professor Sheila Payne in collaboration with Nick Ockenden of the Institute for Volunteering Research, London and Dr Sara Morris
Funded by: Dimbleby Cancer Care and Marie Curie Cancer Care
Project start date: July 2011
Project end date: June 2012
Resources:
EURO IMPACT
For more information contact: Sheila Payne

A consortium has been awarded European Commission funding under Marie Curie Actions of Framework Programme 7.

The general aim of the European Inter-sectoral and Multi-disciplinary Palliative Care Research Training (EURO IMPACT) is to develop a multi-disciplinary, multi-professional and inter-sectoral educational research framework in Europe aimed at monitoring and improving palliative care.

The EURO IMPACT consortium includes six palliative care research centres in Europe - the United Kingdom, Belgium, the Netherlands, Italy and Norway. Twelve early stage researchers started working and studying for PhDs at these institutions in 2011. The six partner institutions work with each other and with other partners (such as the European Union Geriatric Medicine Society and Springer Publishing Company) to train and develop the group to become high-quality researchers in Palliative Care. Training courses are run at the Cicely Saunders Institute at King's College London, the European Palliative Care Research Centre in Trondheim, and the International Observatory on End-of-Life Care at Lancaster University.

EURO IMPACT was launched on the 1st December 2010 and will run for four years.

Update:

The Interim Review was completed in October 2012, and feedback from the European Commission officer indicated excellent progress with the project.

Early Stage Researchers:

Appointed April 2011 for 3 years

Experienced Researcher:

Appointed June 2012 for 18 months

Applicants: Sheila Payne, Sarah Brearley
Funded by: European Commission funding under Marie Curie Actions of Framework Programme 7
Project start date: December 2010
Project end date: November 2014
Resources: Euroimpact website
Euroimpact Newsletter - January 2012

 

Themes of Activity
International Research

The Observatory continues to engage with a wide range of international projects, which can be viewed by clicking here.

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