IOELC Publications

An extensive list of recent publications, generated by staff, students and affiliated members of the International Observatory on End of Life Care can be found on this page. Please visit Archived publications for our other publications.

Recent Publications

Articles & Reports

Christine Milligan, Chris Dowrick, Sheila Payne, Barbara Hanratty, Pamela Irwin, David Neary, David Richardson. (April 2013) Men's Sheds and other gendered interventions for older men: improving health and wellbeing through social activity. A systematic review and scoping of the evidence base. A report for the Liverpool-Lancaster Collaborative (LiLaC) and Age UK.
(A link to this document can be found here).

Loucka M, Pasman RH, Brearley SG, Payne SA, Onwuteaka-Philipsen B. (2013) Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech Republic and Slovakia. Progress in Palliative Care.
Available online: 31 July 2013, DOI:10.1179/1743291X13Y.0000000067
(A link to this document can be found here).

Payne, S, Grande, G (2013). Towards better support for family carers: A richer understanding. Palliative Medicine, 27: 579-580, doi:10.1177/0269216313488856

Loucka, M, Payne, S, Brearley, S on behalf of EURO IMPACT. How to Measure the International Development of Palliative Care? A Critique and Discussion of Current Approaches. Journal of Pain and Symptom Management, available online 13 June 2013, doi:

Clive A, Bhatnagar R, Preston NJ, Jones HE, Maskell N (2013). Interventions for the management of malignant pleural effusions (Protocol). Cochrane Database of Systematic Reviews, Issue 5. Art. No.: CD010529. DOI: 10.1002/14651858.CD010529.

Gysels M, Evans CJ, Lewis P, et al. (2013). MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research. Palliative Medicine. May 21. [Epub ahead of print] doi: 10.1177/0269216313488018

Jünger S, Brearley S, Payne S, Mantel-Teeuwisse AK, Lynch T, Scholten W, Radbruch L. (2013) Consensus Building on Access to Controlled Medicines: A Four-Stage Delphi Consensus Procedure. Journal of Pain and Symptom Management, published online 21 May 2013, doi: 10.1016/j.jpainsymman.2013.01.014.

Evans CJ, Benalia H, Preston NJ, et al. (2013) The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop. Journal of Pain and Symptom management, published online ahead of print April 26, doi: 10.1016/j.jpainsymman.2013.01.010.

Hanratty B, Addington-Hall J, Arthur A, et al. (2013) What is different about living alone with cancer in older age? A qualitative study of experiences and preferences for care. BMC Family Practice. February 20; 14:22. doi: 10.1186/1471-2296-14-22.

Payne S (2013). Pain-relief access crisis leaves millions suffering around globe. The Conversation 22 May 2013

Higginson IJ, Evans CJ, Grande G, Preston N, et al. on behalf of MORECare (2013). Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews. Published online 24 April, BMC Medicine, 11:111. doi:10.1186/1741-7015-11-111

Papavasiliou ES, Brearley SG, Seymour JE, Brown J, Payne SA, on behalf of EUROIMPACT (2013). From Sedation to Continuous Sedation Until Death: How Has the Conceptual Basis of Sedation in End-of-Life Care Changed Over Time? Journal of Pain and Symptom Management, available online 6 April 2013,

Hennings J, Froggatt K, Payne S (2013). Spouse caregivers of people with advanced dementia in nursing homes: A longitudinal narrative study. Palliative Medicine, published online before print 13 March 2013, doi: 10.1177/0269216313479685.

Kinley J, Froggatt K, Bennett MI. (2013) The effect of policy on end-of-life care practice within nursing care homes: A systematic review. Palliative Medicine. 27(3): 209-20.

Gamondi C, Larkin P, Payne S. (2013) Core competencies in palliative care: an EAPC White Paper on palliative care education - part 1. European Journal of Palliative Care, 20(2): 86-91.

Gamondi C, Pott M, Payne S. (2013) Families' experiences with patients who died after assisted suicide: a retrospective interview study in southern Switzerland. Annals of Oncology, published online before print February 27, doi:10.1093/annonc/mdt033.

Radbruch L, Payne S, de Lima L, Lohmann D. (2013) The Lisbon Challenge: Acknowledging Palliative Care as a Human Right. Journal of Palliative Medicine, published online before print January 31, doi:10.1089/jpm.2012.0394.


Participatory Research in Palliative Care: Actions and reflections

Participatory Research in Palliative Care - front cover of book

Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.

This book was co-edited by Dr Katherine Froggatt.
ISBN: 9780199644155


Psychology for Nurses and the Caring Professions, Fourth Edition

Psychology for Nurses and the Caring Professions, 4th edition - front cover

This bestselling book enables those working in health and social care to learn and apply sound psychological principles in the delivery of excellent, evidence-based, patient-centred care. The emphasis throughout is on the promotion and maintenance of personal wellbeing and quality of life – for care professionals and those they care for.

The new, fouth edition features a more engaging and user-friendly format and has been comprehensively revised and updated to reflect the latest psychological knowledge. Psychological principles are also clearly set out and summarised in ways that are easy to read and understand.

The book was co-edited by Professor Sheila Payne.
ISBN: 9780335243914

Palliative and end of life care for children and young people: home, hospice, hospital

New title by Anne Grinyer

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues.

People interested in obtaining this book can do so through most good book sellers, including Amazon.
The ISBN is: 978-0470656143

Death, Dying and Social Difference

Professor Sheila Payne, second left,  attends the official launch of the book at the Help the Hospices Conference in Bournemouth, September 2011

Professor Sheila Payne, second left, attends the official launch of the book at the Help the Hospices Conference in Bournemouth, September 2011

The second edition of an edited book 'Death, Dying and Social Difference' published by Oxford University Press was launched at a special symposium at the Help the Hospices conference in Bournemouth on Wednesday 28th September. Book cover imageThe book is edited by Dame Barbara Monroe, who holds an honorary Chair at the International Observatory on End of Life Care and Professor Sheila Payne, Director of the International Observatory on End of Life Care and David Oliviere. Other members of the Faculty of Health and Medicine have contributed chapters including Professor Tony Gatrell, Professor Carol Thomas and Dr Mary Turner.

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