Big data has big potential for healthcare. From epidemiological analysis to early diagnosis, the datafication of life opens up new opportunities for preventative, diagnostic and therapeutic data analytics. However, accessing and analysing data in ethical and lawful ways is a complex challenge.
This workshop brings together data scientists, clinicians, policymakers, technology developers, and researchers who are working in the context of health big data. The workshop aims to collaboratively map data flows in healthcare and explore innovative responses to ethical, legal, and social opportunities and challenges with particular attention to three questions:
It will be an interactive workshop. We will showcase available technologies, and use your expertise and experience to discuss current obstacles in your work, both in terms of process and technology, as well as the potential and challenges of big data to support better healthcare in practice.
The Workshop is hosted by the SODA projectwhich develops novel approaches and technologies that allow data sharing without compromising data security or privacy, including multi-party computing (MPC) and privacy preserving techniques for ethical big data analytics in healthcare. This workshop is a collaboration between researchers at Lancaster University, people affected by long term diseases such as diabetes and dementia, their carers, and the Alexandra Institute in Aarhus, Denmark.
We would be delighted to welcome you. Please register here to secure a place.
09:00 – 09:30 > Welcome, Registration and Coffee
09:30 – 09:45 > Introduction
09:45 – 10:45 > Mapping Data Flows
10:45 – 11:00 > Coffee Break
11:00 – 11:45 > MPC Demo
11:45 – 12:30 > Setting up an MPC collaboration: Initial Discussion
12:00 – 13:30 > Lunch Break
13:30 – 14:15 > Rapid Prototyping Data Interoperability
14:15 – 15:00 > Is IT ethical? – Ethics through Design
15:00 – 15:30 > Coffee Break
15:30 – 16:30 > Plenary and Next Steps
Senior Usable Security Expert, Alexandra Institute, Denmark, SODA Project
In a world where we – actively or passively – share more and more data about ourselves, security and privacy become increasingly important. Mads has done research in usable privacy and security and has expert knowledge of both fields. He is driven by a need to develop user-centred solutions that are accessible by all users even though the underlying system may be highly complex. To achieve this, users must be involved throughout the design and development process. Mads has an MSc in software engineering from Aalborg University. He wrote his PhD at Aarhus University and did a postdoc at Carnegie Mellon University in Pittsburgh, USA. Personal URL
Professor of Sociology at Lancaster University, Director of the Centre for Mobilities Research
Monika’s research focuses on the digital dimension of social practices of mobility and multi-agency disaster risk management drives responsible innovation in a range of projects, e.g. CaTalyST(Citizens Transforming Society), BRIDGE(Bridging resources and agencies in large-scale emergency management), SecInCoRe(Secure Dynamic Cloud for Information, Communication and Resource Interoperability based on Pan-European Disaster Inventory). She initiated the community platform www.isITethical.eu. She received an honorary doctorate from Roskilde University, Denmark for her work on participatory design. She edits the book series Changing Mobilities (Routledge) with Peter Adey. Website
Research Fellow, School of Sociology and Social Policy, Leeds University
I joined the School of Sociology and Social Policy in February 2016 as a Research Fellow on the Wellcome Trust-funded project “Translations and transformations in patienthood: cancer in the post-genomics era” project, working with the principal investigators Professor Anne Kerr (Leeds) and Professor Sarah Cunningham-Burley(University of Edinburgh) and research fellows Dr Julia Swallow, Dr Tineke Broer, and Dr Emily Ross.
Wellcome Research Fellow AI in Healthcare, Centre for Mobilities Research, Lancaster University
Expert in Ethical, Legal and Social implications of technologies in the health and emergency response domains. Website
International Lecturer and Designer, Imagination, Lancaster University
Malé Lujan Escalante (PI), ImaginationLancaster at Lancaster Institute of Contemporary Arts, Expert Knowledge Exchange and cultural studies of technologies via creative methods in the health and emergency response domains, Ethics through Design Lead of the isITethical Service and Community Platform.
Head of Informatics at North West Ambulance Service NHS Trust
Business Intelligence Manager at University Hospitals of Morecambe Bay NHS Trust
Matt Heys is an experienced Business Intelligence Manager with a demonstrated history of working in the hospital & health care industry. He is skilled in Public Speaking, Data Warehousing, Healthcare Information Technology (HIT), Management, and Software Development. He is a strong research professional with a Bachelor of Science (BSc) focused in Physics, Astrophysics and Cosmology from Lancaster University. Website
Partnership Development Manager, Health Engagement and Innovation Team, Faculty of Health & Medicine, Lancaster University
Senior Research Associate in Spatial Statistics / Spatial Epidemiology, Faculty of Health & Medicine, Lancaster University
I am a Senior Research Associate in Spatial Statistics in the CHICAS research group at Lancaster University. Previously I held academic positions at Queensland University of Technology, London School of Hygiene and Tropical Medicine, and Harvard School of Public Health. My research focuses on spatial and spatio-temporal statistics and their applications to health surveillance. Specifically, I develop statistical methods and software to explore the spatial and temporal patterns of disease, determine their association with potential risk factors, and allow rapid detection of outbreaks. Applications include modelling of lymphatic filariasis in sub-Saharan Africa, leptospirosis in Brazil, and cancer in Australia. I am author of SpatialEpiApp, a Shiny web application for the analysis of spatial and spatio-temporal disease data, and co-author of epiflows, an R package for travel related spread of disease. I received my Bachelor’s degree in Mathematics and my Doctorate degree in Statistics from the University of Valencia, Spain, and my Master’s degree in Biostatistics from the Harvard School of Public Health. Website
Specialist Anthropologist, Alexandra Institute, Denmark, SODA Project
As an anthropologist, Laura is an important contributor to innovation processes where she analyses the relationship between people, technology and business. Her work spans several domains, problem areas and project types but always has an application-oriented approach to business and technology development. Laura is an expert in posing the right questions to understand the users, see problems from a new perspective or facilitate collaboration among people from diverse disciplines. Laura has many years’ experience of running and leading workshops to identify values and challenges in organisations. She also facilitates processes where different project partners work together to identify problem areas and contribute to innovative solutions. An important part of her work is to transform academic knowledge into social utility. She therefore contributes to scientific publications, gives talks and organises knowledge dissemination events. Laura has an MA in anthropology from Aarhus University where she specialised in design anthropology and innovation processes. As part of her studies, she conducted fieldwork in Silicon Valley. Website
Professor, School of Health and Medicine, Lancaster University
My research interests lie in ‘Environment and human health’ with expertise in molecular microbial ecology/environmental microbiology. I am particularly interested in non-tuberculous mycobacteria and their environmental routes for human exposure. Of main interest is Mycobacterium avium subspecies paratuberculosis (Map) which causes inflammatory bowel disease (Johne’s disease) in the majority of animals. With collaborators, we are examining Map’s role in Crohn’s disease, a similar human inflammatory condition. Map is significantly associated with this crippling disease and we seek to ascertain whether it is the cause. Other interests include: antibiotic resistance in the natural and hospital environments, gene transfer in the environment and diversity of bacteria in bird guts and in those involved in bee nutrition.
PhD Student, Lancaster University Management School
Senior Policy Officer, Information Commissioner’s Office
Data Scientist, Centre for Health Informatics, Computing and Statistics (CHICAS), Lancaster Medical School
A data scientist since before the term was invented, with specialist skills in spatial statistics and mapping. I am part of the Chicas Research Group in the Medical School, working mostly on the application of spatial statistics to disease epidemiology and mapping problems. My research interests include: Spatial Statistics Software Development, Open Source Geospatial Software, Epidemiology. Website
Professor at LUMS Lancaster University
Within the ambit of how information technologies (IT) and systems impact individuals and collectives, Monideepa studies, teaches and publishes in two tracks. The Information Systems track includes maladaptive (e.g. technostress) uses of IT and their individual and organizational consequences, human-algorithm collaboration/artifical intelligence, technology-enabled business innovation and business strategy, healthcareIT and digital health, and impacts of technology in under-developed or disconnected economic and social contexts. The Operations Management track includes application and use of IT in supply chain management and healthcare operations.
Lecturer, Lancaster Medical School
I work in the area of computational statistics. I am currently working collaboratively on spatio-temporal statistical methods, associated computational algorithms and the integration of these into web-based information systems. Specifically, I’m interested in: Methodological and computational aspects of log-Gaussian Cox Processes; combining data recorded at multiple spatial scales; filtering methodology and applications; forecasting meningitis incidence in sub-Saharan Africa in collaboration with the World Health Organisation; spatial prediction of campylobacter in the UK; spatial modelling of survival outcomes. Website
Senior Lecturer in Design Interactions, Imagination Lancaster
Emmanuel’s research is driven by his life’s mission to discover and share knowledge that inspires people to act on themselves and to enjoy healthier lives. Emmanuel leads interdisciplinary international research in design for health, which lies at the intersection of public health, design for behaviour change and technology. He is the editor of the Routledge book in Design for Health and is currently writing a Monograph on Design for People Living with Dementia: Innovations and Interactions, to be published in 2019.
Professor, Department of Politics, Philosophy and Religion
Stephen Wilkinson’s most recent research is on reproductive ethics and the regulation of reproductive technologies, especially the ethics of selective reproduction (practices that involve choosing between different possible future people). A book on this topic (Choosing Tomorrow’s Children, Oxford University Press) was published in 2010. A previous phase of work focused on the commercial exploitation of the human body and culminated in his first book, Bodies for Sale (Routledge, 2003). He has also written on various other ethics topics including: biomedical research, conjoined twins, futility, mental illness, passive euthanasia, and resource allocation. He is the holder of a Wellcome Senior Investigator Award (jointly with Professor Rosamund Scott of King’s College London) on reproductive donation. Website
Lecturer, School of Health and Medicine
Lisa Wood is a lecturer in Social Sciences at Lancaster Medical School. Her research focusses on technologically mediated practices drawing on Science and Technology Studies, Organisation Studies and Feminist Technoscience. She is interested in how practitioners generate knowledge, more recently looking at practices ‘on the move’ feeding into interests in knowledge production, accountability, responsibility and autonomy in practice. She is on Twitter @DrLisaWood Website
Lecturer in Ageing in Health Research, Lancaster University
Her research interests are cultural understanding and dementia care approach, the intergenerational relationships and livelihood of older people, the residential segregation by age and ageism, cognitive ageing, the social, demographic and policy determinants of healthy and active ageing. She uses quantitative research methods. She is interested in using big data in ageing research.