Lancaster researchers will join a team of European experts which will investigate the role of the neighbourhood in the everyday lives of people with dementia and their families in a new research project announced during the G8 dementia summit today (11 December).
The ‘Neighbourhoods and Dementia’ study was one of six research projects announced by the Economic and Social Research Council (ESRC) along with the National Institute for Health Research (NIHR) as part of a £20 million funding boost which will significantly add to the understanding of dementia.
The project will be the first large-scale research programme to work alongside people with dementia and their families in a variety of roles from advisers to co-researchers. It comes as ministers, researchers, pharmaceutical companies and charities are gathering in London for the summit.
Dr Siobhan Reilly, senior lecturer in health research, at Lancaster University will be working on the ‘Neighbourhoods and Dementia’ project. She said: “This is a fantastic opportunity for the research team to be in a position to work alongside people with dementia and their families to significantly improve the research evidence base and improve dementia care.”
Dr Reilly will lead a work package to develop a standard set of outcome measures so that we can assess whether people with dementia and their carers receive the right treatment at the right time. Along with researchers at the University of Manchester she will also co-lead a large scale trial of a dementia training programme for improving acute care for people with dementia who are admitted to hospitals.
Professor John Keady from The University of Manchester, which will lead the study, said: “In our five-year study we want to celebrate the achievements, growth and contribution that people with dementia and their carers make to society.”
Mike Howorth, who has dementia, is one of the people who will work as a researcher and is already employed by Greater Manchester West Mental Health NHS Foundation Trust where he works with recently diagnosed patients as the Open Doors Facilitator at Woodlands Hospital, Salford. For the last three years, Open Doors has helped to give people with dementia a voice and platform to share experiences and put forward opinions.
Mr Howorth said: “I think the research programme idea is fantastic. I’ve got first-hand knowledge of what it’s like to live with dementia and help those who have it so I know involving people with dementia and their carers will make this project invaluable.”
Other projects funded within the Dementia Initiative will look at: promoting independence in dementia; managing agitation and raising quality of life; living well with dementia; developing a publicly available tool to help meet the future needs of dementia patients and visual aids and the impact they have on the quality of life of patients with dementia and their carers.
ESRC Chief Executive Paul Boyle said: "Dementia is a major challenge for our society, and it is imperative to develop an understanding of the needs of those with dementia, their families and the communities they live in.
"These six funded projects will provide much-needed evidence for changes in future health and social care policy, as well as practical guidance for charities and third sector organisations working with sufferers of dementia.”
There are currently 44 million people in the world living with dementia, and by 2050 this number is set to treble to 135 million. Following on from last year’s announcement by Prime Minister David Cameron of plans to tackle the 'national crisis' posed by dementia, the G8 Dementia summit aims to agree what can be done to stimulate greater investment and innovation in dementia research.
The research team involves seven universities (Manchester, Stirling, Liverpool, UCL, Salford, Lancaster, and Linköping in Sweden) and four user groups: EDUCATE and Open Doors (Greater Manchester, England); The ACE Club (Rhyl, North Wales) and the Scottish Dementia Working Group (Glasgow, Scotland).