Participant Information Sheet

What is the Relationship Between Self-Compassion and Depression, Anxiety, and Resilience in Adults with Epilepsy?

My name is David Baker. I am conducting this research as part of a doctoral programme in clinical psychology at Lancaster University.

What is the purpose of the study?

Research suggests that some people with epilepsy may experience depression and anxiety as a result of their condition.

We would like to ask adults with epilepsy to complete a short survey about epilepsy, self-compassion, depression, anxiety, resilience and stigma. We want to find out whether self-compassion (the act of being kind to oneself) can:

  • Help to reduce depression and anxiety in people with epilepsy
  • Increase resilience in people with epilepsy
We are also interested in whether epilepsy-related stigma is linked to self-compassion. We hope that this will help to improve psychological care for people with epilepsy in the future.

Can I take part?

We would like to invite you to take part if you:

  • Are aged 18 or above
  • Have been diagnosed with epilepsy
  • Are able to understand English

Do I have to take part?

No. Your involvement in this study is entirely voluntary. You are free to withdraw at any time up until you complete the survey. Once you have completed the survey it will not be possible to withdraw your answers, because they will be anonymous.

What will happen if I decide to take part?

At the beginning of the survey, we will ask you to give your consent to take part. We will then ask you to answer some questions about epilepsy, self-compassion, depression, anxiety, resilience and stigma. All your answers will be anonymous, and it should take around 15 minutes to complete.

How do I take part?

You can access the survey via the link at the bottom of this page. You may ask a family member, friend or carer to help you to complete the survey if needed.

Alternatively, to receive a paper copy of the survey and a pre-paid return envelope, please contact David Baker:
Email: d.baker1@lancaster.ac.uk
Tel: on 07870410021

Will my data be confidential?

All data provided by you will entirely anonymous. Nobody will have access to any personal information that identifies you.

Lancaster University will store the electronic survey data securely for up to 10 years. We will input the answers from paper surveys on to our electronic survey software and destroy the paper copies immediately.

What will happen to my data?

We will analyse the survey data you provide. The results will be written up and submitted as part of a thesis within the Lancaster Doctorate in Clinical Psychology programme.

Our findings will be shared with the charity Epilepsy Action to ensure that they are accessible to people with epilepsy. We also hope that the findings will be written up into a brief paper for submission in a relevant academic journal.

What are the possible benefits or risks of taking part?

We cannot guarantee any direct benefits of taking part. However, completing our survey may help you to reflect on your experiences. You will also be helping to inform our understanding of psychological care for people with epilepsy in the future.

We do not anticipate any risks in taking part in this study. However, if you experience any distress, during or after your involvement in the research, you should contact someone for support. Information on available resources can be found at the end of the survey.

What if I have a complaint?

If you have any complaints about this research, please contact the primary researcher, David Baker:
Tel: 07870410021
Email: d.baker1@lancaster.ac.uk

Alternatively, to make a complaint to Lancaster University, you can contact:
Dr Bill Sellwood, the Research Director:
Tel: 01524 593 998
Or
Prof Bruce Hollingsworth, the Head of Division:
Tel: 01524 594 154

For independent advice, please contact:
Prof Roger Pickup, Associate Dean for Research:
Tel: 01524 593 746
Email: r.pickup@lancaster.ac.uk

Who is involved in this research?

The study will be undertaken by the Primary Researcher, David Baker (Trainee Clinical Psychologist, Doctorate in Clinical Psychology, Lancaster University, Tel: 07870410021).

The study will be supervised by the Academic Supervisor, Dr Fiona Eccles (Lecturer in Research Methods, Lancaster Doctorate in Clinical Psychology, Tel: 01524 592807), and the Field Supervisor, Dr Helen Caswell (Consultant Clinical Neuropsychologist, Department of Clinical Neuropsychology, Salford Royal NHS Foundation Trust, Tel: 0161 206 2029).

Thank you for taking the time to consider taking part in our study.

If you would like to take part, please click on the link below to provide consent and take the survey:

https://lancasteruni.qualtrics.com/SE/?SID=SV_5budG2MXqeS4BCt