Participant Information Sheet

Study title: Crying with patients in palliative care services: The experiences of psychological therapists

My name is Laura Richardson, and I am a Trainee Clinical Psychologist studying at Lancaster University. I would like to invite you to take part in a research project considering your experiences, or views of, crying with a patient when working within a palliative care setting.

Please take the time to read through this information sheet to see if you would be interested in taking part.

What is the study about?

You have been sent this information as you currently work within a palliative care service. This study aims to explore your experiences, or views of, crying with a patient when working within a palliative care service. It may be that you have experienced this personally, or not experienced this yourself, but have strong views that you wish to share in an interview. I am interested in your reflections on this topic, including any positive or negative experiences or opinions that you may have.

I am asking for individuals to apply that have worked therapeutically on a one to one basis with patients, providing psychological interventions or counselling, for which they received clinical supervision. You may be a Clinical Psychologist, Counselling Psychologist, Trainee Psychologist, Counsellor, Psychotherapist, or Clinical Nurse Specialist. Individuals may apply regardless of job title, as long as they have experience of offering psychological therapeutic work within a palliative care service for at least six-months, and feel able to reflect on this during an interview. You need to be aged over 18 years to take part.

What will I be asked to do if I take part?

You will be asked to complete an interview lasting approximately an hour, depending on how much you wish to say. This interview can take place face to face at your home, or at your place of work, if you prefer. Alternatively, we can complete the interview over the telephone or Skype, if that is easier. The interview will be audio-recorded and following our interview, I will analyse what you have said to see if it similar to how others feel. Please note, that although we can complete an interview via Skype, this method of interviewing is not wholly secure.

Before our interview, I will ask you to sign a consent form to confirm that you are happy to take part.

Do I have to take part?

No, you do not need to take part and it is your choice if you decide to. There are no negative implications through not taking part.

Are there any benefits to taking part?

It is hoped that this research will help us to learn more about the experiences and views of psychological therapists working within palliative care services. Although you may find it interesting to participate, there are no direct benefits to taking part, although some people do find it helpful to talk about their experiences.

Unfortunately, I cannot offer money or any other incentives for taking part in this study.

Are there any risks?

There are no risks anticipated with taking part. However, if you experience any distress, you are encouraged to contact one of the contact persons provided at the bottom of this sheet.

How many people will take part?

It is hoped that up to 10 individuals will participate. If more than 10 people wish to take part, then the first 10 to express an interest will be able to participate.

Who has reviewed the project?

This study has been reviewed and approved by the Faculty of Health and Medicine Research Ethics Committee at Lancaster University.

Will my data be identifiable?

All efforts will be made to ensure that your information remains confidential. Audio data from the interview will be transferred to a safe space on the Lancaster University Virtual Private Network once the interviews are complete, and deleted from the audio recording device. This data will be deleted from the server once the project is complete. Your consent forms and personal information will be stored in a locked cabinet at all times and anonymised. Anything that identifies you, such as your name, demographic information or location, will be removed.

Your interview will be typed-up and anonymised. These interview transcripts will not be shown to anyone outside of the research team. Any electronic copies of the interview will be encrypted and stored on a password-protected computer. Direct quotes from the interview will be used in the written report however any identifying information will be removed, and you will be given a pseudonym. When the project is complete, electronic data will be stored securely at Lancaster University and also with the main researcher for a period of 10 years, before being destroyed.

There may be occasions when information cannot be kept confidential. This may happen if you tell me any information that suggests that you or another person are at risk of harm. In this situation, I would have a duty to inform my research supervisors in order to keep you and others safe. Where possible, this would be discussed with you first.

What if I want to withdraw from the study?

You are able to withdraw from the study at any point in the two weeks following your interview. After this time period, it may not be possible to do so, as your data may have been merged with that of other participants and used to generate the findings.

Please note, that if you decide to withdraw from the study, you do not have to give a reason for why this is.

What will happen to the results?

The results of the study will be written up in a report and submitted to Lancaster University as part of my Doctorate of Clinical Psychology. The report may be published in a journal in the future. I will also tell the organisations that helped with recruitment about my findings but they will not know who has taken part. You will be given a summary of the overall findings and you are welcome to request a copy of the report.

How can I take part?

If you are interested in sharing your experiences of offering peer-support, or you have any further questions, then please feel free to contact me on the number at the bottom of this information sheet. Alternatively, you are welcome to email me on the email address below.

Where can I obtain further information about the study if I need it?

If you have any further questions about this study, then please contact me to discuss this:

Laura-Jayne Richardson
Lancaster University Doctorate in Clinical Psychology
Furness College
Lancaster University
LA1 4YG
Tel: 07508375640
Email: l.richardson6@lancaster.ac.uk

Complaints

If you have any problems or concerns about any aspect of this study and you do not wish to speak to me directly, then you can contact:

Dr. Bill Sellwood (Programme Director)
Doctorate in Clinical Psychology
Furness College?
Lancaster University
LA1 4YG
Tel: 01524 593998
Email: b.sellwood@lancaster.ac.uk

Alternatively, you may wish to speak to someone who is not involved with the doctorate course. In this case, you should contact:

Professor Roger Pickup (Chair of FHM Research Ethics Committee)
Faculty of Health and Medicine
Division of Biomedical and Life Sciences
Lancaster University
LA1 4YG
Tel: 01524 593746
Email: r.pickup@lancaster.ac.uk

Resources in the event of distress

I have included the details for one organisation below that you can contact for additional support, if you feel this will be helpful. Please note, that in the first instance you might speak with your own GP or Trust support systems, if you feel that this information has caused you any distress.

Saneline:
Website: www.sane.org.uk/what_we_do/support/helpline
Tel: 0300 3047000

Please feel able to circulate this information to any colleagues that may be interested in taking part.

Thank you for taking the time to read this information sheet.