Decolonising Palliative Care: Learning from Research Beyond the Global West

An online webinar held on 10th January 2024, with presentations from Dr Diah Martina, Huiju Liang, Dr Silva Dakessian Sailian, and Dr Yakubu Salifu, followed by a Q&A session. The video recording can be found under Recent Seminars/Webinars towards the top of this page.

Three of the presentations, by Drs Diah Martina, Silva Dakessian Sailian, and Yakubu Salifu can be found in the following PDF document.

Download a combination of three of the presentations given during the event: Decolonising Palliative Care Presentations

How can we learn from the death of a care home resident?

This short video demonstrates how to lead a discussion with care home staff (called reflective debriefing), focusing on what went well and what can be improved in end of life care. With the high number of deaths of older people in care homes due to COVID19, this is a timely way to support better end of life care. The video was adapted by Sharon Kaasalainen from McMaster’s University, Canada, from learning materials produced by the International Observatory on End of Life Care as part of the PACE project.

Watch the Video: How can we learn from the death of a care home resident?

Prognostic awareness in advanced cancer patients

Dr Martin Loučka, Center for Palliative Care, Prague, Czech Republic

Presented: 11/12/19 - Watch Recording: Prognostic awareness in advanced cancer patients

End-of-life care for older people: The challenges and complexities of Australian inpatient settings

Dr Melissa Bloomer, Senior Lecturer at Deakin University, Australia

Presented: 04/07/19 - Download Presentation: IOELC Research Seminar - Melissa Bloomer - 040719 Watch Video Recording: IOELC Research Seminar 04/07/19

Assessing hydration status, symptoms and quality of life in advanced cancer at the end of life

Dr Amara Nwosu, Royal Liverpool University Hospital

Presented: 17/07/18 - Watch Video Recording: IOELC Research Seminar 170718

Negotiating end-of-life care between tradition and modern healthcare: Coastal Chinese’ perspective

Assistant Professor Harry Yi-Jui Wu, Medical Ethics and Humanities Unit, Li Ka Shing Faculty of Medicine, University of Hong Kong

Presented: 13/02/18 - Download Presentation: Negotiating end-of-life care between tradition and modern healthcare

Global Challenges? Research in low income settings - Palliative care experiences

Professor Julia Downing, Makerere University, Kampala, Uganda and Chief Executive International Children's Palliative Care Network

Presented: 24/10/17 - Watch Video Recording: Global Challenges? Research in low income settings - Palliative care experiences

Addressing equity in palliative care research: the New Zealand experience

Professor Merryn Gott, University of Auckland

Presented: 13/06/17 - Watch Video Recording: Addressing equity in palliative care research: the New Zealand experience

Clinical research in Palliative Care

Professor David Currow, Flinders University, Adelaide, Australia

Presented: 27/09/16 - Download Presentation: Clinical research in Palliative Care (PDF) Watch Video Recording: Clinical research in Palliative Care (YouTube)

Research: The Cutting Edge. Experiences from palliative care research

Professor Heather Richardson, St Christopher's Hospice, London, UK

Presented: 20/09/16 - Download: Research: The Cutting Edge (PDF) Watch Video Recording: Research: The Cutting Edge (YouTube)

ATLANTES Research Programme: Hunam dignity, advanced illness and palliative care

Professor Carlos Centeno, University of Navarra, Spain

Presented: 19/04/16 - Download: ATLANTES Research Programme

Development of community palliative care in Denmark

Dr Mette Raunkiaer, University of Southern Denmark

Presented: 19/11/15 - Download: Development of community palliative care in Denmark

Knowledge about Palliative Care - mapping, user involvement (and development of practice)

Professor Helle Timm, University of Southern Denmark

Presented: 19/11/15 - Download: Knowledge about Palliative Care - mapping

Remains in the system: Investigating the presence of mourning online

Selina Ellis Grey, Lancaster University

Presented: 11/03/15 - Download: Remains in the system

The Metaphor in end of life care Project (MELC)

Dr Veronika Koller, Linguistics and English Language, Lancaster University, UK

Presented: 10 April 2014

Creating Palliative Care Programs in Care Homes, Rural and First Nations communities: A Canadian Capacity Development Approach

Professor Mary Lou Kelley, Lakehead University, Thunder Bay, Ontario, Canada

Presented: 17 October 2013 – Download: Creating Palliative Care Programs in Care Homes

Changing Rituals Around Death

Professor Linda Woodhead, Dept of Politics, Philosophy and Religion, Lancaster University, UK

Presented: 18 July 2013

Shedding light on the importance of gendered therapeutic spaces for health and wellbeing amongst older men

Professor Christine Milligan, Centre for Ageing Research (C4AR), Lancaster University, UK

Presented: 21 February 2013

MORECare: A framework for conducting research in palliative care

Dr Nancy Preston, International Observatory on End of Life Care, Lancaster University, UK

Presented: 13 December 2012 – Download: MORECare

Developing palliative care in primary care internationally: the EAPC Taskforce in primary Palliative Care

Professor Scott Murray MBE, University of Edinburgh, UK

Presented: 25 October 2012 – Download: The EAPC Taskforce in primary Palliative Care

Primary results of a pilot qualitative study conducted upon Swiss bereaved family members after assisted suicide

Dr Claudia Gamondi, Senior consultant at the Palliative Care Department, Oncology Institute of Southern Switzerland (IOSI), Bellinzona, Switzerland

Presented: 19 July 2012

Measuring outcomes of hospital-based palliative care in the US

Dr Brian Cassel, Fulbright Scholar - King's College London (2011-2012), London, UK

Presented: 19 April 2012 – Download: Measuring outcomes of hospital-based palliative care in the US

Colliding or Co-operating in End of Life Care - what is happening at the interface between health and social care in UK

Pam Firth, Hon. Lecturer in Health Research, Lancaster University, UK

Presented: 15 December 2011 – Download: Colliding or Co-operating in End of Life Care

Identifying children who may have palliative care needs: a spectrum of children's palliative care

Dr Lynda Brook, Alder Hey Children's Hospital, Liverpool, UK

Presented: 20 October 2011 – Download: A spectrum of children's palliative care

Cultural relativism: implications for palliative and end of life care

Dr Jonathan Koffman, King's College, London, UK

Presented: 30 June 2011 – Download: Cultural relativism: implications for palliative and end of life care

Development of an Australian Palliative Care Volunteer Strategy

Sue Salau, Policy Manager, Palliative Care Victoria, Victoria, Australia

Presented: 14 April 2011 – Download: Development of an Australian Palliative Care Volunteer Strategy

Malignant melancholia: Biomedical discourses of 'surveillance' and 'responsibility' surrounding women 'at risk' of developing breast cancer from the end of the nineteenth to the beginning of the twenty-first century

Dr Tom Lynch, International Observatory on End of Life Care, Lancaster University, UK

Presented: 17 February 2011 – Download: Malignant melancholia

Use of technology for research aimed at improving patient care

Dr Penny Wright, Macmillan Principal Research Fellow, Psychosocial Oncology and Clinical practice research Group, University of Leeds, UK

Presented: 16 December 2010 – Download: Use of technology for research aimed at improving patient care

Preferred Priorities for Care: Preliminary results from an evaluation in the North West of England

Dr Iris Cohen Fineberg, International Observatory on End of Life Care, Lancaster University, UK

Presented: 21 October 2010 – Download: Preferred Priorities for Care

Improving public awareness of end of life issues among older people in North Lancashire: A peer education approach

Dr Katherine Froggatt, International Observatory on End of Life Care, Lancaster University, UK

Presented: 24 June 2010 – Download: Improving public awareness

Dying behind bars: an evaluation of end of life care in prisons in Cumbria and Lancashire

Dr Mary Turner, International Observatory on End of Life Care, Lancaster University, UK

Presented: 15 April 2010 – Download: Dying behind bars

The experience of pleural mesothelioma in Northern England

Dr Helen Clayson, St Mary's Hospice, Ulverston, Cumbria, UK

Presented: 25 February 2010 – Download: The experience of pleural mesothelioma in Northern England

Reflections on illness and metaphor. 30 years after Susan Sontag

Professor Neil Small, University of Bradford

Presented: 17 December 2009 – Download: Reflections on illness and metaphor

Exploring the barriers to effective communication between senior doctors and patients: Developing the dance of a medical consultation

Dr Susan Salt, Medical Director, Trinity Hospice, Blackpool, UK

Presented: 15 October 2009 – Download: Developing the dance of a medical consultation

Exploring Ageing and Dying: Developing a research programme to explore the end of life care needs of older people with conditions other than cancer

Dr Merryn Gott, University of Sheffield, UK

Presented: 25 June 2009 – Download: Exploring Ageing and Dying