International Observatory on End of Life Care (IOELC)

Welcome to the International Observatory on End of Life Care.  We aim to conduct high quality cutting edge research and provide innovative educational programmes to improve palliative and end of life care for patients and family carers.

Our research

Excellent research: patient and carer focused research drawing from clinical and social science perspectives to contribute to end of life care knowledge, theory and practice.

Innovative education to prepare and inspire future leaders in palliative care research and practice.

Partnership for impact: working closely with local, national and international health and social care communities to create practical and academic impacts from our research and education. 

 

Our research at the International Observatory on End of Life Care focuses on the following areas: 

  • Care settings: exploring the impact of providing palliative and end of life care in settings such as nursing homes, community settings and prisons.
  • Models of palliative and supportive care provision: understanding how best to provide palliative and end of life care by exploring areas such as integrated service models, advance care planning and the use of volunteers.
  • Populations receiving palliative and supportive care:  understanding the needs of older people and the ageing agenda, family carers, and those with non – malignant conditions such as dementia or stroke.
  • Clinical research: understanding how to improve a range of physical and psychosocial symptoms.
  • Research methods: improving how palliative care research is conducted through exploring issues such as study recruitment, evaluating complex interventions and ways of working with vulnerable and dying populations. 

Research projects include:

MyPal: Fostering Palliative Care of Adults and Children with Cancer through Advanced Patient Reported Outcome Systems
01/01/2019 → 30/06/2022
Research

MOOC Palliative Care: Making it Work
02/07/2018 → 28/07/2018
Other

Tender: To evaluate the Age UK End of Life Pathfinder
09/10/2017 → 31/03/2019
Research

NIHR School for Primary Care Research (Oxford, Bristol and Cambridge): Establishing research priorities to improve the management of patients with advanced heart failure using the James Lind Alliance method £91,859
01/10/2017 → 01/04/2019
Research

The Namaste Care intervention to improve the quality of dying for people with advanced dementia living in care homes: A realist review and feasibility study for a cluster randomised controlled trial
01/12/2016 → 31/03/2019
Research

Using participatory action research to advance hospice care
01/11/2016 → 31/03/2019
Research

Peer support to maintain psychological wellbeing in people with advanced cancer: A feasibility study for a Randomised Controlled Trial.
05/10/2015 → 04/10/2018
Research

Evaluation End of Life EoL Social Action Fund
06/11/2014 → 30/06/2016
Research

Connections of Workplace Cultures, Patient Safety and Dignity
01/08/2014 → 19/12/2014
Other

PACE: Comparing the Effectiveness of Palliative Care for Elderly People in Long Term Care Facilities in Europe
01/02/2014 → 31/01/2019
Research

ACTION: A multi-centre cluster randomised controlled trial of advance care planning - an innovative Palliative Care Intervention to Improve Quality of Life in Oncology (European Union FP7)
01/12/2013 → 31/12/2017
Other

Both sides of the fence: using action research to improve end of life care for prisoners
01/06/2013 → 31/05/2016
Research

Patient-centered integrated palliative care pathways in advanced cancer and chronic disease
01/11/2012 → 31/10/2016
Research

Metaphor in End of Life Care
01/09/2012 → 28/06/2014
Research

How can and should UK society adjust to dementia
01/03/2012 → 30/04/2012
Research

Unpacking The Home
01/06/2011 → 31/05/2013
Research

European Intersectorial and Multidisciplinary Palliative Care Research Training
01/04/2011 → 31/03/2014
Other

FP7: ATOME
01/12/2009 → 30/11/2014
Research

Measuring and demonstating the impact of user involvement on health and social care services for cancer in the UK
01/03/2008 → 30/11/2008
Research

What are the views of people affected by cancer and other illnesses about end of life issues? carer perspectives.
01/08/2005 → 30/09/2005
Research

What are the views of people affected by cancer and other illnesses about end of life issues? professional and patient perspectives.
01/08/2004 → 31/01/2005
Research

Social Implications of the Increase in Wheelchair Use
01/04/2001 → 30/09/2004
Other

Sickness Absence and employee behaviour
01/01/1999 → 01/01/2001
Research

Disability, Rights and Welfare: Rurality, Gender and Ethnicity
01/01/1900 → …
Research

The spatial and social dynamics of public of public inclusion for people with dementia
01/01/1900 → …
Research

International research

Profesor Sheila Payne talks about the International Observatory on End of Life Care's role in global research.

Visitors Open Week 19 May - 22 May 2020

Join us in Lancaster for between 1 and 4 days to meet the team at the International Observatory on End of Life Care at Lancaster University and spend time with other visitors to learn more about supportive and palliative care research and education. 

The programme costs £20 to cover the resources for the week and welcome refreshments.

Please feel free to advertise this by downloading our IOELC Open Week 2020 Flyer.

The week consists of:

  • A week costs just £20 to cover the resources for the week and welcome refreshments.
  • A programme of activities including sessions learning about research methods, planning and conducting research, dissemination and publishing in palliative care, and our innovative educational programmes.
  • An optional visit to a local hospice to learn more about UK hospice provision (additional cost of £50 donation to the hospice).
  • Travel and accommodation to be arranged independently by attendees. Lancaster University is just an hour from Manchester International Airport by convenient direct train, with budget fl ights available to many destinations. Accommodation is available on Lancaster University Campus at both budget student standard and hotel standard.

Travel and accommodation information on request.

To find out more, contact Lesley Dunleavy

IOELC display stand

IOELC Research Seminars

During term-time, we hold Research Seminars every second month on days and times which we hope will suit both our global and local audience.

Seminar speakers across many disciplines are invited to speak about their research and/or experiences in the field of end of life care in the form of a 40 minute presentation. Staff and students of Lancaster University and especially all members of our IOELC Network group are invited to attend these seminars and are particularly invited to actively join in the discussion that follows the presentation.

If you wish to be kept updated about our future research seminars, we would encourage you to sign up for IOELC Network membership. For more information, visit the Network and people tab on this page.

 

Tuesday, 3rd March 2020, 1300-1400, Lecture Theatre 9, LUMS Building, Lancaster University
Anna Winterbottom - "Supporting older adults with chronic and established kidney disease make treatment decisions"

 

Anna is Research Psychologist (Leeds Teaching Hospitals Trust) and honorary Senior Research Fellow at the University of Leeds.

Anna will focus on her most recent collaborative project which developed a decision aid to support older adults with established kidney disease make treatment decisions. The talk will describe:
Patient and staff experiences of people making decisions in the context of a chronic, incurable disease
The role of decision aids in supporting people with kidney disease to make treatment decisions
Supporting and improving end of life planning and palliative care for people with kidney disease


Download the flyer: IOELC Research Seminar Flyer - 03 March 2020
Directions to the venue

 

 

Study with us

The International Observatory on End of Life Care offers advanced and innovative education programmes in palliative and end of life care. Our programmes are specifically designed to meet local and global needs, and facilitate learning between those working in different cultures and contexts. Programmes are designed to address the needs of both full and part time students, and many of our students work in the field of palliative and end of life care whilst also completing their studies.

Traditional PhD (by research and thesis) in Health Research

We offer supervision of research students in many areas of health-related social science. We welcome applications from students wishing to pursue research in the areas of palliative and end of life care highlighted as the focus of our research interests.  We are particularly interested in supporting applications for those applying for externally funded fellowships.

Read more

PhD in Palliative Care

The aim of this innovative part time blended learning course is to equip people working in palliative, hospice and end of life care to undertake advanced study within their chosen field, including clinical work, education, research, management, policy and advocacy.

Read more

Improving palliative care in care homes for older people - a free online course for March 2020

Are you interested in improving the care of older people living and dying in nursing homes? Do you want to ensure that they have the best possible quality of life and quality of death? If so, then this free, online course is for you.

For more information about the Massive, Open, Online Course (MOOC), visit the FutureLearn website.

IOELC Network

The Observatory is proud to have links with over 250 individuals from around the globe, who have wide-ranging experiences in end of life care and have expressed an interest in our research and education activities. Known as the IOELC Research Network, membership of this group is purely voluntary and we encourage you to sign up to our mailing list, which is used to notify members of forthcoming research seminars/lectures, news updates from the Observatory and when additional resources, (like recorded seminar presentations), are available to view online or download.

Whether you have an interest in attending our research seminars either in person or online or you simply want to catch up on Observatory news and other events, we hope that this list membership will continue to be a rich source of information. At any time, you are free to unsubscribe from this list but we do hope that you will stay with us. We look forward to welcoming you to our network.

Please complete our membership form, providing your name, the email address you would prefer to be used for the email list, and your institution (if applicable).

Contact us

Catherine Walshe
Co-Director

Tel: (0)1524 510124
Email: c.walshe@lancaster.ac.uk

 

Nancy Preston 
Co-Director

Tel: (0)1524 592802
Email: n.j.preston@lancaster.ac.uk

 

Anthony Greenwood
Information Officer

Tel: (0)1524 594976
Email: a.j.greenwood@lancaster.ac.uk

Address:

International Observatory on End of Life Care
Division of Health Research
Faculty of Health and Medicine
Furness Building
Lancaster University
Lancaster
LA1 4YG
United Kingdom

Academic Staff

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Resources

A collection of Research Network seminar resources to watch, read and download.

Explore the archive

Publications

A list of our publications from 1995 to present.

IOELC Publications